Be Courageous Kids Spotlights Brayden our HERO!
Here's Brayden's story, as told by his Mom:
Nov 1, 2007 is the day our lives would be forever changed. It's the day that our little boy who has to fight his body everyday to work was born fighting..... fighting for his life.
My pregnancy started like any other and was great until the 30th week when I started experiencing swelling and extreme chest pains. I went to the ER to be told I had h.e.l.l.p syndrome and preeclampsia and the baby had to be taken via emergency C-section immediately or we could both die.
Brayden was born at 30 weeks, weighing 3 lbs, and was in the NICU for almost 4 months. His time there was a daily struggle for life from being vented for 2 weeks, to going on CPAP, to then graduating to O2, which he came home on.
Upon coming home Brayden was receiving OT, PT and speech. He was diagnosed with infantile spasms (a deadly seizure disorder) at 4 months which meant we wouldn't see our baby smile until almost his first birthday because he was seizing every few minutes. He was then diagnosed with cerebral palsy at age 2 years old. He has spastic quad CP, which means all of his limbs are affected. He has very high muscle tone which makes it very difficult to move his limbs. Brayden may never be able to walk or talk, uses a wheelchair and can only eat puréed food—but he is a very smart boy even though he cannot express it.
Brayden is now in 2nd grade and still receives OT, PT, and speech at school. He also loves hippo therapy (horse therapy) and aquatic therapy. He's endured multiple hospital stays, been under anesthesia 12 times already, had countless surgeries and he's only 8 years old. We were most recently in the hospital for seizure monitoring and told that his seizures have gotten worse and that his brain is in a constant state of seizing. His neurologist told us that he's "surprised that Brayden is as functional as he is" with how badly his brain is seizing. This just proves what a strong, amazing, inspirational little boy we have. He fights every day to prove people wrong.